Rare Disease Research, LLC

Rare Disease Research, LLC (RDR) is a clinical research site network based in Atlanta, Georgia, dedicated to conducting clinical trials for rare diseases. Founded in 2017, RDR focuses on neurogenetic disorders and aims to accelerate the development of safe and effective treatments for patients with unmet medical needs. The company employs a multidisciplinary team that collaborates with sponsors, Contract Research Organizations (CROs), and patient advocacy groups to enhance trial awareness and recruitment. RDR conducts Phase I-IV clinical trials and offers patient recruitment and retention strategies. The company advocates for public health initiatives, including expanded newborn screenings, to improve early diagnosis of rare genetic conditions. RDR specializes in trials for conditions such as Duchenne Muscular Dystrophy, Spinal Muscular Atrophy, and various neurological disorders. It also facilitates access to investigational therapies from sponsors, including gene therapies and other innovative treatments.